Turning 24!

So two weeks ago, I had my 24th birthday. I know I’ve talked on here quite a lot about how my depression spikes around Christmas’s and birthday’s, and so I often struggle. However I managed to largely avoid it this year, it was only the afternoon of the day before my birthday that I felt the black clouds descending, luckily it was only a passing shower, not a full on storm.

This was my 6th birthday since I’ve been chronically ill, 8th if you count the two years when I was definitely ill, but didn’t realise it, although I don’t in this case because I was able to celebrate my 17th and 18th relatively normally.

My birthday didn’t actually get going until about 5:30pm, because I had to wait for my mum to get home from work and for my grandparents to arrive before anything remotely “birthdayish” happened. I was quite worried because the trend of the few days before was me feeling okay in the morning, but then as the day went my pain steadily increased until by around 4pm all I could do was lay in bed in a dark room. Sure enough the pain was steadily increasing, and I didn’t know how I was going to get through presents, cards and chatting, but miraculously when I went downstairs the pain lifted slightly and I was actually able to enjoy myself.

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New Kitten & The End Of Year 1 – Treatment Weeks 51 & 52

Hello there,

Two very exciting things happened this week. Firstly, after a bit of a palaver, we finally got our kitten! He is wonderful, adorable and practically perfect in every way. Seriously, look at that thumbnail!

Secondly, I made it to the end of treatment year one! I posted a special video, and wrote a blog post talking about how I feel about it in more detail, so I’m not going to say too much about it here, but I do just want to say one thing.

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1 year treatment anniversary!

Hello there,

Well, here I am, 365 days after writing The Results Are In – I Have Lyme Disease. I think I’ve said this before about my time in treatment but I’ll say it again, it simultaneously feels much longer and much shorter than a year. When I’m laying in bed in lots of pain, unable to tolerate any light, the minutes seem to crawl by, but then I can blink and yet another month has gone past.

I’ve been trying to think how best to sum up this past year, and honestly I’m not sure I can, or at least not well…but obviously I’m going to try, or what would be the point of this blog post right?

Overall…it’s been tough.  The days where I’ve felt happy and confident that I’m heading in the right direction have definitely been in the minority. That’s not to say I haven’t seen improvements, the first 6 months, when I was on oral and then IV antibiotics, I definitely saw improvements in individual symptoms, but overall I felt worse, because I have terrible herx’s and side effects from the antibiotics. The last 6 months overall I’ve been feeling better because I’ve not been on antibiotics, I’ve been on a herbal protocol instead, but my symptoms themselves have been worse.

However I’m not sure the last 6 months really counts! haha. In January I came off a medication I’d been on for 3 years and all hell pretty much broke loose. I couldn’t sleep, my GI symptoms went through the roof, I was so nauseas I struggled to eat and even drink. So the last few months, my Lyme treatment has taken somewhat of a back seat, as I’ve just been so focused on trying to work out how to improve my GI symptoms, and unfortunately I’m still trying.

I feel like it’s been so chaotic that I’ve barely been able to catch my breath. I wish I could say I’d seen massive improvements and I was well on the way to feeling better, but I can’t. Although I’ve seen small improvements in some areas, in the main ones; fatigue and pain, I haven’t. Obviously that is pretty disheartening, actually no…it’s heartbreaking, but I don’t let my heart break every day. I have to keep wake up every morning, keep taking my dozens of tablets, do my best to support my recovery in others ways, because I just have to keep going.

I knew when I was diagnosed with Chronic Lyme disease that I would be in it for the long haul in terms of treatment, and I knew I wanted to keep a record of the big picture, not just the vlogs I’ve been doing so I decided to capture one second of my day, every day. I’m amazed I’ve kept it up for a year, and you can view the result right here.

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Haircut & Genetic Test Results – Treatment Weeks 49 & 50

Hello there,

This video is going up a week earlier than usual, because next week is my 1 year treatment anniversary! (Whaaaat!) So I’ve got something special planned.

This fortnight wasn’t that great physically. I’ve been struggling with the hot weather, it’s makes my POTS symptoms much worse, as well as making sleeping much more difficult, so all in all not great! haha.

Although some good things did happen; I got my haircut, had an appointment with my Lyme doctor where I got my genetic test results, and had my first and now annual diabetes checkup, which went well. So all in all it wasn’t too bad.

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Seeing an Endocrinologist 🏥 – Treatment Weeks 47 & 48

Hello there,

This fortnight has been kind of strange, because basically all of it has been spent preparing and then dealing with the aftermath of my endocrinologist appointment. I’ve been waiting for this appointment for about 5 months, so there’s been a lot of build up, plus because of how my last NHS specialist appointment went, I was really not looking forward to it, all of that affected my mental health way more than I was expecting.

It didn’t go as bad as I was expecting though, which is of course good, but I didn’t get any answers, although I’m kind of used to that by now.

All in all I’m just glad it’s over.

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First Infrared Sauna🌡& New PJ’s – Treatment Weeks 45 & 46

Hello everyone,

This fortnight has actually been really similar to the one before. I had a horrible herx, I managed to leave the house for something non-medical related (I went to visit my Dad at his open studio event), and then there were lots of days just spent recovering.

I got some new pyjamas, and I know other chronic illness warriors will understand how important it is the have nice pyjamas! haha. I also had my first experience of an infra red sauna! If you watched my last video, you will have seen that it got delivered at the end. I was really excited to try it, and it went really well, I go into lots of detail in the video about it. Hopefully it’ll be really good for me in the long run.

I hope you enjoy the video.

Until next time, Rhosyn.

Major Herx & Enjoying The Sunshine – Treatment Weeks 43 & 44

Hello there,

This fortnight has not been that bad, I actually managed to make it out of the house!

I went to the garden centre, which was amazing, although very overwhelming because it was really sunny and really busy, so it was very bright and loud. Two things, which as a rule, I generally try and avoid. But really it was just great to get out somewhere that wasn’t a hospital or doctors surgery.

I also made it outside to sit in the garden, which was fantastic, because I’m pretty sure I didn’t do that at all last year. So that obviously shows progress. Unfortunately immediately afterwards I had a seriously major herx, that was actually quite scary, and took me a long time recover.

Actually on second thought it’s been kind of a strange two weeks because although I’ve done a couple of things that are really great, the rest of the days have pretty much been spent recovering and feeling kind of rubbish. So a bit of a mixed bag, but I’m still counting it as good because I made it outside…twice!

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