In my last post I talked about how I was waiting for a doctors appointment, I managed to get an appointment for Friday evening. It was with a different GP, because my usual one has gone on maternity leave, but luckily she was really nice.
So…to get to straight to it…all my tests came back normal. Lupus was negative, Lyme Disease was negative, my autoimmune panel all negative, I had no signs of inflammation in my body, and my general blood work was normal. The only thing that was slightly low was Vitamin D, and that’s to be expected with how much time I have to spend indoors.
As messed up as this is, I felt crushing dissapointment. I wanted there to be something wrong that could be fixed, or at least for the tests to reflect how ill I feel. I think that’s one of the hardest parts of this illness, to feel so ill and yet all the tests come back clear. I just don’t understand how that can happen.
The only positive that I can draw from this is that at least my health isn’t going to get more complicated. I have ME/CFS, POTS, depression and anxiety, god knows how throwing something else in the mix would affect me.
On the down side it means there is nothing that anyone can do for me. I just have to deal with it, which is really rubbish.
The last few days have been hard, I’ve been trying to stay positive and appreciate the little things, but thats difficult when today I’ve not been able to get out of bed.
Having fresh flowers in my room is definitely one of the little things I do appreciate though.