I was planning to do a video all about this, but the last few weeks I’ve been feeling pretty terrible. I barely have the energy to talk coherently, let alone do it in front of a camera. Plus I thought it would give me a chance to write a proper blog post, which hasn’t happened it quite a while.
As you can probably guess from the title of this blog post I’ve decided to do a course of IV antibiotics as the next stage of my treatment at Breakspear. I know many people will have many questions all about this, so I thought I’d answer them all here.
So first of all, when am I doing this?
I start on the 21st November, and it will last for 4 weeks.
What does it involve?
Well, a lot of IV’s…duh haha. No, what I mean is I’ll be having a 2 hour IV infusion 6 days a week for four weeks. The infusions themselves will take about 2 hours, but I’ll often have other things done such as blood tests and appointments with my doctor. So the time I’ll actually be at Breakspear every day will vary.
I know, that sounds like a lot, how am I going to manage?
As to that, I’m really not sure. Due to the amount of commuting that’s involved I’m actually going to staying nearby the hospital for the duration of my treatment. This cuts the commute down from a 5 hour round trip, to just 50 minutes, much easier of my body. My parents are taking it turns to come and stay with me, to look after me, drive me around, and generally do everything for me.
Of course, as someone who struggles to leave the house more than once a week, and that’s with 2 days of carefully planned rest beforehand. Leaving the house 6 days a week, and having side effects of treatment to deal with, will be extremely difficult. Not to mention the anxiety of being away from home for a whole month!
Why am I doing this?
Well as you probably already know, I have Chronic Lyme Disease. As with any chronic infection, it’s extremely hard to treat. I’ve been taking oral antibiotics for nearly 5 months months now, and although I’ve noticed some improvements they have been small, and have been somewhat eclipsed by the side effects and herx’s I’ve endured. IV antibiotics are much better at treating chronic infections because they bypass the digestive system and go straight into the blood stream. With oral antibiotics the acid in your stomach kills some of the antibiotic when you take it, and so dulls the effects.
I’m hopeful that the IV antibiotics will help me see some real improvement in my symptoms.
How am I feeling about all this?
This is by far the hardest question to answer! haha. I’m excited at the prospect of doing this, as everyones told me this is my very best chance at improvement, but I’m trying not to let myself get too excited, because what if it doesn’t work as well as everyone is expecting?
I’m also incredible anxious! I haven’t been away from home for more than one night in 2 years, and I haven’t been away from home for a month since my spell at university 4 and 1/2 years ago! Plus, when you factor in that I’m going to have to leave the house 6 days of every 7…well…it’s terrifying.
To be honest, it doesn’t really feel real yet. I haven’t started packing or getting things together, although I have started making some lists. I think publishing this blog post will be the first step in my accepting that this is actually happening.
All in all I’m generally feeling like this:
If you have any questions that I haven’t answered here, just leave me a comment.
Until next time, Rhosyn.