New Kitten & The End Of Year 1 – Treatment Weeks 51 & 52

Hello there,

Two very exciting things happened this week. Firstly, after a bit of a palaver, we finally got our kitten! He is wonderful, adorable and practically perfect in every way. Seriously, look at that thumbnail!

Secondly, I made it to the end of treatment year one! I posted a special video, and wrote a blog post talking about how I feel about it in more detail, so I’m not going to say too much about it here, but I do just want to say one thing.

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1 year treatment anniversary!

Hello there,

Well, here I am, 365 days after writing The Results Are In – I Have Lyme Disease. I think I’ve said this before about my time in treatment but I’ll say it again, it simultaneously feels much longer and much shorter than a year. When I’m laying in bed in lots of pain, unable to tolerate any light, the minutes seem to crawl by, but then I can blink and yet another month has gone past.

I’ve been trying to think how best to sum up this past year, and honestly I’m not sure I can, or at least not well…but obviously I’m going to try, or what would be the point of this blog post right?

Overall…it’s been tough.  The days where I’ve felt happy and confident that I’m heading in the right direction have definitely been in the minority. That’s not to say I haven’t seen improvements, the first 6 months, when I was on oral and then IV antibiotics, I definitely saw improvements in individual symptoms, but overall I felt worse, because I have terrible herx’s and side effects from the antibiotics. The last 6 months overall I’ve been feeling better because I’ve not been on antibiotics, I’ve been on a herbal protocol instead, but my symptoms themselves have been worse.

However I’m not sure the last 6 months really counts! haha. In January I came off a medication I’d been on for 3 years and all hell pretty much broke loose. I couldn’t sleep, my GI symptoms went through the roof, I was so nauseas I struggled to eat and even drink. So the last few months, my Lyme treatment has taken somewhat of a back seat, as I’ve just been so focused on trying to work out how to improve my GI symptoms, and unfortunately I’m still trying.

I feel like it’s been so chaotic that I’ve barely been able to catch my breath. I wish I could say I’d seen massive improvements and I was well on the way to feeling better, but I can’t. Although I’ve seen small improvements in some areas, in the main ones; fatigue and pain, I haven’t. Obviously that is pretty disheartening, actually no…it’s heartbreaking, but I don’t let my heart break every day. I have to keep wake up every morning, keep taking my dozens of tablets, do my best to support my recovery in others ways, because I just have to keep going.

I knew when I was diagnosed with Chronic Lyme disease that I would be in it for the long haul in terms of treatment, and I knew I wanted to keep a record of the big picture, not just the vlogs I’ve been doing so I decided to capture one second of my day, every day. I’m amazed I’ve kept it up for a year, and you can view the result right here.

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Haircut & Genetic Test Results – Treatment Weeks 49 & 50

Hello there,

This video is going up a week earlier than usual, because next week is my 1 year treatment anniversary! (Whaaaat!) So I’ve got something special planned.

This fortnight wasn’t that great physically. I’ve been struggling with the hot weather, it’s makes my POTS symptoms much worse, as well as making sleeping much more difficult, so all in all not great! haha.

Although some good things did happen; I got my haircut, had an appointment with my Lyme doctor where I got my genetic test results, and had my first and now annual diabetes checkup, which went well. So all in all it wasn’t too bad.

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