My name is Rhosyn, I’m 23 years old, and I’m a full-time chronic illness warrior.
I’ve been ill for about 7 years, but it only really started to become serious 5 years ago in January 2012 when I was 18, slap bang in the middle of my first year of university. I kept going back to the doctors again and again, and after having hundreds of tests that all came back normal, I was given the diagnosis of depression. I was advised to go on antidepressants, which I did because I thought it would get me back to normal. Little did I know it would be the start of a long, very hard road.
The antidepressants didn’t help, and I steadily got worse and worse until I had to drop out of university and move back home with my parents. Eventually in April of 2013 I was seen by a specialist and given the diagnosis of M.E. otherwise known as Chronic Fatigue Syndrome (CFS), and recently Systemic Exertion Intolerance Disease (SEID). Just a few days later I also got diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS). I haven’t got any better since then, in fact I’ve got worse, but it’s got to the point now where I can’t really leave the house.
In April 2016, after many years of questioning and challenging my diagnosis I decided to put aside my principles and pay to be seen privately. I went to Breakspear Medical, and in May I was diagnosed with late stage Lyme Disease and the co-infection Bartonella, as well as 2 chronic viral infections and 2 fungal infections in my gut. The Lyme disease has caused both my thyroid and my pancreas to stop working, which goes some way to explaining why I’m so ill.
I started treatment at the beginning of June 2016, and I’m documenting the whole process here on my blog, and through video diaries, which I’m posting on Youtube.
So on the whole, life isn’t easy, but I try and stay as positive as possible. Some days I do very well, and some days I’m terrible at it. This blog documents the good, the bad and everything in-between.
So please, come say hi and have a look around. I hope you enjoy your visit.