Hello there!
I’ve been ill for about 8 years, but it only really started to become serious 6 years ago in January 2012 when I was 18, slap bang in the middle of my first year of university. I kept going back to the doctors again and again, and after having hundreds of tests that all came back normal, I was given the diagnosis of depression. I was advised to go on antidepressants, which I did because I thought it would get me back to normal. Little did I know it would be the start of a long, very hard road.
The antidepressants didn’t help, and I steadily got worse and worse until I had to drop out of university and move back home with my parents. Eventually in April of 2013 I was seen by a specialist and given the diagnosis of M.E. otherwise known as Chronic Fatigue Syndrome (CFS), and recently Systemic Exertion Intolerance Disease (SEID). Just a few days later I also got diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS).
In April 2016, after many years of questioning and challenging my diagnosis I decided to put aside my principles and pay to be seen privately. I went to Breakspear Medical, and in May I was diagnosed with late stage Lyme Disease and the co-infection Bartonella, as well as 2 chronic viral infections and 2 fungal infections in my gut. The Lyme disease has caused both my thyroid and my pancreas to stop working, which goes some way to explaining why I’m so ill.
I started treatment at the beginning of June 2016, and I’m documenting the whole process here on my blog, and through vlogs on Youtube.
So on the whole, life isn’t easy, but I try and stay as positive as possible. Some days I do very well, and some days I’m terrible at it. This blog documents the good, the bad and everything in-between.
Unfortunately because my health is so poor I can’t post on here regularly any more. The best places to find me where I post pretty regularly are below.
As I said, I upload vlogs about my life and treatment to YouTube, there’s a lot more information about my current treatment and health on there than here. If you’d like to see more of my videos and subscribe then here’s the link.
https://www.youtube.com/channel/MyChronicLife
I also have a Facebook page for my blog, so you can head over there and give it a like then every time I post it’ll pop straight into your newsfeed!
https://www.facebook.com/mychroniclife1
The social media site I use most regularly though, would have to be instagram. I post one on there a couple of times a week, and on stories every day.
https://www.instagram.com/my_chronic_life_/
So please, have a click around, and I hope you find something you like.
Hi! I nominated you for the versatile blog award!
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Thank you so much 🙂
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Hi, you have another nomination, this time for the Sisterhood of the World award. xx
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Thank you so much! 🙂 xxx
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Wow that sure is quite the shopping cart full there girl 😦 I’m sorry you have so much on your plate. What is it that you were going to University for?
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Haha yeh! It does feel like that sometimes. Thank you 💜 I was studying Biomedical Science. Xx
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Hi Rhosyn! I’m sorry to hear what you’re going through. Thank you for sharing your story!
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Thank you for reading it! 🙂
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Hi there, so sorry you are having to go through this. Remember you are not alone, there are lots of us out here:)
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Thank you! I’m sorry you’re going through a similar thing too. Xxx
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Hi, Sorry to hear you are so young to suffer so much. I’ve had a lot of different health issues and after 20 years finally go diagnosed correctly with Lyme Disease. I was given many different diagnosis’s I didn’t accept. I’d like to share this Lyme questionnaire that I found helpful for so many people. http://lymeontario.com/wp-content/uploads/2015/03/Horowitz-Questionnaire.pdf
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Thank you 🙂 I’m actually thinking of getting tested for Lyme Disease at a private clinic, so this is a really good resource, thank you so much.
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Good. You must see an Lyme Literate MD. Check ILADS.org to find someone. Regular MD’s are not educated in Lyme. Good luck! Keep us posted. Kim
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Thanks 🙂 I will do.
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Hi there. Have you been tested for Lyme disease? Our symptoms sound so similar.
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Hi, yes I have been diagnosed with Lyme and Bartonella, I just haven’t updated this about section yet haha 😛
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Yeah, who has the energy for that? We’ve got a war to fight!
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Too right! I will try to update it soon though haha 😛
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Glad you got a diagnosis. I’m seeing a new Lyme doctor that also specializes is mold illnesses. Got a long process to figure everything out but this doctor has a pretty detailed plan. Keep us updated on your journey. I hardly have energy to blog. 😟
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Thanks, it was a big step, and I’m so happy that I’m finally on the right path. That’s a good idea, I’m hoping to get tested for mild toxicity too. I’ll do my best, I’m struggling to keep up with blogging as well! Xxx
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HI there, I’m really sorry to read you’re so poorly… I hope writing down your feelings helps you as much as it helps me, when I write my blog. You’re a true WARRIOR – Keep fighting it babe! 🙂
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Hi, thank you. You’re right, writing helps so much too. Thanks! 😊 you too! 💪🏻 xxx
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