New Kitten & The End Of Year 1 – Treatment Weeks 51 & 52

Hello there,

Two very exciting things happened this week. Firstly, after a bit of a palaver, we finally got our kitten! He is wonderful, adorable and practically perfect in every way. Seriously, look at that thumbnail!

Secondly, I made it to the end of treatment year one! I posted a special video, and wrote a blog post talking about how I feel about it in more detail, so I’m not going to say too much about it here, but I do just want to say one thing.

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1 year treatment anniversary!

Hello there,

Well, here I am, 365 days after writing The Results Are In – I Have Lyme Disease. I think I’ve said this before about my time in treatment but I’ll say it again, it simultaneously feels much longer and much shorter than a year. When I’m laying in bed in lots of pain, unable to tolerate any light, the minutes seem to crawl by, but then I can blink and yet another month has gone past.

I’ve been trying to think how best to sum up this past year, and honestly I’m not sure I can, or at least not well…but obviously I’m going to try, or what would be the point of this blog post right?

Overall…it’s been tough.  The days where I’ve felt happy and confident that I’m heading in the right direction have definitely been in the minority. That’s not to say I haven’t seen improvements, the first 6 months, when I was on oral and then IV antibiotics, I definitely saw improvements in individual symptoms, but overall I felt worse, because I have terrible herx’s and side effects from the antibiotics. The last 6 months overall I’ve been feeling better because I’ve not been on antibiotics, I’ve been on a herbal protocol instead, but my symptoms themselves have been worse.

However I’m not sure the last 6 months really counts! haha. In January I came off a medication I’d been on for 3 years and all hell pretty much broke loose. I couldn’t sleep, my GI symptoms went through the roof, I was so nauseas I struggled to eat and even drink. So the last few months, my Lyme treatment has taken somewhat of a back seat, as I’ve just been so focused on trying to work out how to improve my GI symptoms, and unfortunately I’m still trying.

I feel like it’s been so chaotic that I’ve barely been able to catch my breath. I wish I could say I’d seen massive improvements and I was well on the way to feeling better, but I can’t. Although I’ve seen small improvements in some areas, in the main ones; fatigue and pain, I haven’t. Obviously that is pretty disheartening, actually no…it’s heartbreaking, but I don’t let my heart break every day. I have to keep wake up every morning, keep taking my dozens of tablets, do my best to support my recovery in others ways, because I just have to keep going.

I knew when I was diagnosed with Chronic Lyme disease that I would be in it for the long haul in terms of treatment, and I knew I wanted to keep a record of the big picture, not just the vlogs I’ve been doing so I decided to capture one second of my day, every day. I’m amazed I’ve kept it up for a year, and you can view the result right here.

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Haircut & Genetic Test Results – Treatment Weeks 49 & 50

Hello there,

This video is going up a week earlier than usual, because next week is my 1 year treatment anniversary! (Whaaaat!) So I’ve got something special planned.

This fortnight wasn’t that great physically. I’ve been struggling with the hot weather, it’s makes my POTS symptoms much worse, as well as making sleeping much more difficult, so all in all not great! haha.

Although some good things did happen; I got my haircut, had an appointment with my Lyme doctor where I got my genetic test results, and had my first and now annual diabetes checkup, which went well. So all in all it wasn’t too bad.

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First Infrared Sauna🌡& New PJ’s – Treatment Weeks 45 & 46

Hello everyone,

This fortnight has actually been really similar to the one before. I had a horrible herx, I managed to leave the house for something non-medical related (I went to visit my Dad at his open studio event), and then there were lots of days just spent recovering.

I got some new pyjamas, and I know other chronic illness warriors will understand how important it is the have nice pyjamas! haha. I also had my first experience of an infra red sauna! If you watched my last video, you will have seen that it got delivered at the end. I was really excited to try it, and it went really well, I go into lots of detail in the video about it. Hopefully it’ll be really good for me in the long run.

I hope you enjoy the video.

Until next time, Rhosyn.

Major Herx & Enjoying The Sunshine – Treatment Weeks 43 & 44

Hello there,

This fortnight has not been that bad, I actually managed to make it out of the house!

I went to the garden centre, which was amazing, although very overwhelming because it was really sunny and really busy, so it was very bright and loud. Two things, which as a rule, I generally try and avoid. But really it was just great to get out somewhere that wasn’t a hospital or doctors surgery.

I also made it outside to sit in the garden, which was fantastic, because I’m pretty sure I didn’t do that at all last year. So that obviously shows progress. Unfortunately immediately afterwards I had a seriously major herx, that was actually quite scary, and took me a long time recover.

Actually on second thought it’s been kind of a strange two weeks because although I’ve done a couple of things that are really great, the rest of the days have pretty much been spent recovering and feeling kind of rubbish. So a bit of a mixed bag, but I’m still counting it as good because I made it outside…twice!

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Diabetic Eye Screening & Flowers 🌷 – Treatment Weeks 41 & 42

Hello there,

This fortnight, although I’ve had some rough days, generally it’s been pretty good.

Very excitingly I left the house for something that’s to medical related (a very rare occurrence), to buy some flowers for my mum for mothers day, and I even arranged them myself which went surprisingly well.

I also managed to go for my diabetic eye screening, despite feeling terrible, and it was much easier than I thought, so that was good. I think we can all agree that’s been a long time in coming! haha.

Hope you enjoy the video, and I’ll be back soon.

Until next time, Rhosyn.

New Medication & Some Good Days – Treatment Weeks 41 & 42

Hello there,

This fortnight got off to a rocky start, I think I actually experienced the worst nights sleep I’ve ever had, which is saying something considering how the last couple of months have been.

As the days went on though things actually got better and I had some good days! Greatly helped by the fact that I had an appointment with my doctor where I finally got prescribed an antiemetic. It’s helped so much, it’s just such a relief to be able to sleep and eat better, and just being able to do those two things has really contributed to the good days I’ve had.

 

 

So overall, a great improvement over the last month or so!

Until next time, Rhosyn.